It is estimated that 70 million patients in India suffer from rare diseases, wherein, every 1 out of 20 Indians suffers from a rare disease. Rare diseases include inherited cancers, autoimmune disorders, congenital malformations, and infectious diseases amongst others include Hemangiomas, Hirschsprung disease, Gaucher disease, cystic fibrosis, muscular dystrophies and Lysosomal Storage Disorders. Often life threatening, a delay in medical intervention and the availability of expensive treatment options lead to most patients and their families facing major hurdles in rare disease management.
Expressing his support, Mr. Joy Chakraborty, Chief Operating Officer, P. D. Hinduja Hospital said, “We are pleased to partner with the ORDI and support them in their mission of providing aid to those suffering with rare diseases in our country. Through this initiative, Hinduja Hospital aims to go one-step further and play a crucial role in providing the best of its quality services to help bring to light the current incidence of rare diseases and to empower patients and their families suffering from these rare diseases”.